Cystic Fibrosis Awareness Day

Wednesday, May 1 2013
10:30 am

Location: Nurses Hall, State House

Growing Hope, Achieving Results

You are invited to join the Cystic Fibrosis Foundation and CF Advocates for Massachusetts CF Awareness Day

Speakers to Include:

  • Robert Coughlin, President and CEO MassBio
  • Rep. Steven Walsh, Joint Committee on Healthcare Financing
  • Joan Finnegan Brooks, CF Patient and Advocate
  • Ellen Schwanke, Massachusetts State CF Advocacy Chair
  • Martin Mense, Principal Scientist for Drug Discovery, CFFT Lab Head

Presentation of Proclamations

CF Care Centers

Refreshments will be served

Please respond no later than April 26 to: cbradstreet@cff.org

Sponsored by the Frances Pew Hays Family Foundation

 

Because of risks to people with cystic fibrosis (CF), only one person with CF may be invited. Also, individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events/meetings. These requirements are because CF germs can be passed between individuals who have CF. Some germs in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals. Despite this policy, individuals with CF might choose to attend events or meetings without informing the CF Foundation or without the Foundation’s knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit www.cff.org.

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