Meet the people at the heart of what we all do: the patients.
If you would like to share your patient or #patientdriven story, please contact Jessica Roche.
A complex mental disorder, schizophrenia affects nearly 3 million people nationwide. For actress and radio personality Randye Kaye, it only took one diagnosis for her to take action and lend her voice to the national advocacy... Read More
Energetic and bright-eyed, 12-year-old Jonathon Connolly dreams of becoming a wrestler or firefighter one day. Yet, a debilitating, rare skin disorder makes it impossible for Connolly to even step foot in the ocean, much... Read More
North Carolina native Griffin Lynch, 19, is thriving as a freshman at UNC-Chapel Hill, where he is studying biochemistry, rowing and enjoying the normalcy of dorm life. Yet just two years ago, Lynch had one goal – not... Read More
It’s a campaign he never expected to launch. Yet former Massachusetts Governor Paul Cellucci is opening a new chapter in his storied public-service career, spearheading the UMass ALS Champion Fund – a fundraising initiative... Read More
For Beverly, Mass. resident Sylvan Menezes, ALS is a disease that has disabled him from working, driving and completing routine tasks such as going up steps or getting out of a chair. It has also taken away his ability... Read More
Beth Pond understands all too well the challenges of living with X-linked Hypohidrodic Ectodermal Dysplasia (XLHED). Her brother, Steve, and two of her sons, Nolan (age 16) and Philip (age 15), are affected by the rare... Read More