Meet the people at the heart of what we all do: the patients.
If you would like to share your patient or #patientdriven story, please contact Jessica Roche.
Thirty years ago, Jean Walsh was diagnosed with Friedreich’s ataxia (FA)—a debilitating, life-shortening, degenerative neuro-muscular disorder. There was little understanding of the disease at the time, and no promise... Read More
For Dr. Benjamin Seckler and his wife, Tracy, the decision to become influential players in the biotech world was driven by one goal: to save their child’s life. “Nothing can motivate you more than racing against the clock,”... Read More
Energetic and bright-eyed, 12-year-old Jonathon Connolly dreams of becoming a wrestler or firefighter one day. Yet, a debilitating, rare skin disorder makes it impossible for Connolly to even step foot in the ocean, much... Read More
It’s a campaign he never expected to launch. Yet former Massachusetts Governor Paul Cellucci is opening a new chapter in his storied public-service career, spearheading the UMass ALS Champion Fund – a fundraising initiative... Read More
For Beverly, Mass. resident Sylvan Menezes, ALS is a disease that has disabled him from working, driving and completing routine tasks such as going up steps or getting out of a chair. It has also taken away his ability... Read More