BOSTON, MA, February 29, 2016—More than 425 patients, advocates, caregivers and industry allies rallied today in recognition of International Rare Disease Day. Read More
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I am a mom of a beautiful 21 year old daughter, Gracie, who has a rare disease called Shwachman Diamond Syndrome – a bone marrow failure, pancreatic insufficiency and skeletal disease. For the first 7 years of her life,... Read More
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As many as one in three returning Iraq and Afghanistan veterans suffer the invisible wounds of war— post traumatic stress and traumatic brain injury. Fortunately, some local veterans are finding help at the Red Sox Foundation... Read More