BOSTON, MA, February 29, 2016—More than 425 patients, advocates, caregivers and industry allies rallied today in recognition of International Rare Disease Day. Read More
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Guest post by Paul Bolno, CEO of WAVE Life Sciences, a genetic medicine company focused on developing stereopure nucleic acid therapies for rare neuromuscular and CNS disorders. Read More
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A complex mental disorder, schizophrenia affects nearly 3 million people nationwide. For actress and radio personality Randye Kaye, it only took one diagnosis for her to take action and lend her voice to the national advocacy... Read More