The Congressional Research Service has released an analysis comparing the 21st Century Cures Act, as passed by the House, with the provisions that have been passed by the Senate HELP committee to date. Read More
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Beth Pond understands all too well the challenges of living with X-linked Hypohidrodic Ectodermal Dysplasia (XLHED). Her brother, Steve, and two of her sons, Nolan (age 16) and Philip (age 15), are affected by the rare... Read More