Global Genes and the Child Neurology
Foundation released a white paper report in September 2020 outlining a
set of guiding principles for rare disease care and access that are universally
relevant to all patients with rare diseases. Join the report’s lead
author Eric
Faulkner, Vice President, Real-World Value and Strategy, and Executive
Director, Center of Excellence – Precision and Transformative Medicine, for a
three-part webinar series that highlights the report’s five core guiding
principles to use as a set of fundamental expectations for rare disease patient
care and access. Learn More

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