Thirty years ago, Jean Walsh was diagnosed with Friedreich’s ataxia (FA)—a debilitating, life-shortening, degenerative neuro-muscular disorder. There was little understanding of the disease at the time, and no promise... Read More
Meet the people at the heart of what we all do: the patients.
If you would like to share your patient or #patientdriven story, please contact Jessica Roche.
When Monica and David Gow’s son, Thomas, was diagnosed with narcolepsy with cataplexy, they were determined to bring greater awareness to the disease and help in the search for a cure. Read More
It’s a campaign he never expected to launch. Yet former Massachusetts Governor Paul Cellucci is opening a new chapter in his storied public-service career, spearheading the UMass ALS Champion Fund – a fundraising initiative... Read More