Good Days, a leading national nonprofit patient assistance organization and founder of Chronic Disease Day, invites you to join us for the Chronic Disease Day Leadership Luncheon on Friday, July 10, from 12:00–2:00 p.m. at the MassBio Hub.
Observed annually on July 10 (7/10), Chronic Disease Day highlights the sobering reality that seven out of 10 deaths in the United States are caused by chronic diseases. These conditions claim more than 1.7 million lives each year and account for over 90 percent of U.S. healthcare spending.
At the same time, scientific innovation is transforming the treatment landscape for patients living with chronic and complex conditions. Yet too many individuals continue to face barriers to accessing the therapies and support they need. As healthcare leaders work to reduce the burden of chronic disease, there is a growing need to ensure that medical innovation is not only developed, but also affordable, accessible, and able to reach the patients who stand to benefit most.
We hope you will join fellow patient access and advocacy leaders, healthcare executives, policymakers, and industry stakeholders for this complimentary, limited-capacity discussion focused on improving patient outcomes and expanding access to care. Topics will include affordability, patient support, healthcare access, chronic disease prevention, and the future of treatment delivery.
Program
Welcome and Opening Remarks
Clorinda Walley
President, Good Days
An overview of Chronic Disease Day and the importance of advancing innovation, access, and support for individuals living with chronic and complex conditions.
Expanding Access: Reaching Underserved Populations Through Clinical Research
Clorinda Walley, President, Good Days
Sonali Bloom, CEO, 20/20 Onsite
A conversation on addressing barriers to clinical trial participation and ensuring research opportunities reach diverse and underserved communities.
From Scientific Breakthroughs to Real-World Patient Access
Cienna Ditri, President, Periodic Paralysis Association
Tyler S. Nelson, Ph.D., Research Assistant Scientist, University of Florida College of Medicine
Exploring the path from scientific discovery to patient access and how researchers, advocates, healthcare providers, and industry can work together to improve outcomes.
Advancing the Next Generation of Chronic Disease Treatments
John Feore, Director of Health Policy & Advocacy, Institute for Gene Therapies
A forward-looking discussion on emerging therapies, policy developments, and opportunities to accelerate innovation while ensuring patients can benefit from new advances.
Additional speakers to be announced.
REGISTRATION: https://apdgk7xk.forms.app/chronic-disease-day-healthcare-biotech-leadership-summit-registration
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