Meet the people at the heart of what we all do: the patients.
If you would like to share your patient or #patientdriven story, please contact Jessica Roche.
Thirty years ago, Jean Walsh was diagnosed with Friedreich’s ataxia (FA)—a debilitating, life-shortening, degenerative neuro-muscular disorder. There was little understanding of the disease at the time, and no promise... Read More
For Dr. Benjamin Seckler and his wife, Tracy, the decision to become influential players in the biotech world was driven by one goal: to save their child’s life. “Nothing can motivate you more than racing against the clock,”... Read More