Meet the people at the heart of what we all do: the patients.
If you would like to share your patient or #patientdriven story, please contact Lilly Stairs.
Thirty years ago, Jean Walsh was diagnosed with Friedreich’s ataxia (FA)—a debilitating, life-shortening, degenerative neuro-muscular disorder. There was little understanding of the disease at the time, and no promise... Read More
For Dr. Benjamin Seckler and his wife, Tracy, the decision to become influential players in the biotech world was driven by one goal: to save their child’s life. “Nothing can motivate you more than racing against the clock,”... Read More
When Monica and David Gow’s son, Thomas, was diagnosed with narcolepsy with cataplexy, they were determined to bring greater awareness to the disease and help in the search for a cure. Read More