Rare Disease Day this year is February 28 – raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and caregivers.
Social Media Downloads
If you are inclined to support Rare Disease Day on social media, RareDiseaseDay.org has shareable visuals, cards, filters, frames, virtual backgrounds, banners, and infographics.
Submit a Rare Disease Day Dedication or Share Your Story
The National Organization for Rare Disorders (NORD) is the official US partner for Rare Disease Day. You can share a Rare Disease Day dedication – who you show your stripes for – on their website.
NORD also invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!
Watch the Livestream of the Broad Institute’s Focus on Rare Disease event
The event is taking place in-person at the Broad Institute (415 Main Street, Cambridge, MA) and livestreamed on Monday, February 27, from 1:30 to 5:30 pm. This year’s event is titled Accelerating Rare Disease Research: Patients as Partners.