How to support Rare Disease Day online and beyond

Feb 27, 2023

Rare Disease Day this year is February 28 – raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and caregivers.

Social Media Downloads

If you are inclined to support Rare Disease Day on social media, has shareable visuals, cards, filters, frames, virtual backgrounds, banners, and infographics.

Submit a Rare Disease Day Dedication or Share Your Story

The National Organization for Rare Disorders (NORD) is the official US partner for Rare Disease Day. You can share a Rare Disease Day dedication – who you show your stripes for – on their website.

NORD also invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!

Watch the Livestream of the Broad Institute’s Focus on Rare Disease event

The event is taking place in-person at the Broad Institute (415 Main Street, Cambridge, MA) and livestreamed on Monday, February 27, from 1:30 to 5:30 pm. This year’s event is titled Accelerating Rare Disease Research: Patients as Partners.

See all MassBio News