Event convenes industry leaders and patient advocates to debate and discuss best practices
What: MassBio’s 5th annual Patient Advocacy Summit brings together industry leaders, patient advocates and other stakeholders to examine ways in which life sciences companies can more fully incorporate the patient voice into the work they do. This year’s program includes inspirational stories from patients, breakout sessions to dive into metrics around PA, pain points depending on what department it sits in, FDA guidance on patient experience data, and more. The event will open with a keynote address, and attendees will have ample networking opportunities during breakfast, lunch and a cocktail reception.
When: Friday, November 2, 2018 from 7:30am – 4pm ET
Where: Hyatt Regency, 575 Memorial Dr., Cambridge, MA 02139
Who: Phil Reilly, a doctor, lawyer, and venture partner at Third Rock Ventures, will deliver an inspiring keynote – drawing from his experiences as a highly respected clinical geneticist with an extensive track record of launching and building companies in the rare disease space. Dr. Reilly is also the author of Orphan: The Quest to Save Children with Rare Genetic Disorders, about the struggle to save the lives of children who – because of an unlucky roll of the genetic dice – are born with any one of several thousand rare and debilitating genetic disorders. Dr. Reilly will share his experiences researching and writing the book—which features a number of Massachusetts companies, executives, and patients—and his view of the future of innovation and the industry. Other speakers include:
- Jill Bell, PhD, Director, Global Outcomes Research, Takeda
- Rachel Brake, Global Program Lead, Takeda
- Scott Campbell, Associate Director, Patient Advocacy, Takeda Oncology
- Kinser Cancelmo, President & Founder, Meg’s Fight 4 a Cure, Juvenile Huntington’s Disease Foundation
- Laura Greco, Stage IV lung cancer patient and activist
- Mike Jagielski, CEO, KCR
- Nick Lunger, Parent of Fragile X Patient
- Trista Morrison, Vice President, Communications and Patient Advocacy, North America, Sobi
Interested media can register for free by contacting Jennifer Nason.
Thank you sponsors: Biogen, Sanofi Genzyme, Vertex, BIO, Bristol-Myers Squibb, KCR, Neurofibromatosis Northeast, Sarepta, Shire, Sobi, Takeda, uniQure, and Wave Life Sciences.