Overview
Founded in 2001 in Plymouth, Massachusetts, Jett Foundation’s mission is to empower people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educations opportunities, and ongoing support for every stage of a Duchenne journey.
Jett Foundation began around a kitchen table, created by one mother who found out that her son was diagnosed with Duchenne, a rare, terminal form of muscular dystrophy. Duchenne is the most common fatal genetic disorder of children worldwide. It is a progressive neuromuscular disorder that causes the loss of muscle function and independence. Patients affected by Duchenne lose the ability to walk between the ages of 8 and 12, require respiratory support by their late teens and often survive only into their twenties. There are approximately 20,000 patients in the United States living with Duchenne.
Jett Foundation offers one-of-a kind programs and projects that are essential to the Duchenne and larger muscular dystrophy community. Through Jett Foundation’s Family Workshops, Support Groups, Community Webinars and Welcome Packets, individuals and families affected by Duchenne are empowered with the knowledge, education, tools and support needed to become their own best advocates, to seek out the highest standard of care, the most promising clinical trials and scientific advancements, and the most cutting-edge and innovative treatments available. In addition Jett Foundation has been hosting Camp Promise since 2009, serving nearly 150 Campers each summer, the only over night camp in the country for individuals with Duchenne and other select neuromuscular disorders, that does not have an upper age limit. In 2017, Jett Foundation launched the Jett Giving Fund and it now provides assistance to those with a Duchenne diagnosis through our Accessible Vehicle Fund, our Emergency Fund, and our Equipment Assistance Fund.